10th Annual Rare Disease Day at Einstein
The Rose F. Kennedy Center and the student chapter of the American Academy of Developmental Medicine & Dentistry (AADMD) are hosting Einstein’s 10th Rare Disease Day Celebration, featuring award-winning, former fashion photographer Rick Guidotti.
Chayce, pictured above, is a happy, loving, and energetic little boy who loves PJ Masks superheroes, dancing to music, and running on the playground. Rick met Karson (pictured on the homepage) in 2017, through SOFT, the Support Organization for Trisomy 13, 18, and Related Disorders. She has since passed away but leaves behind many memories of her beautiful smiles.
In recent years, Rick has turned his talents to photographing individuals with genetic disorders. His photographs recognize beauty within difference and seek to challenge the way beauty is defined. His non-profit organization, dedicated to this pursuit, is called Positive Exposure.
Einstein’s Rare Disease Day will feature a virtual video presentation by Rick, titled “Positive Exposure: Spirit of Difference,”; it will be held via Zoom, on Tuesday, March 1, 2022, from 6:00 to 7:30 p.m., and be followed by a Q&A session. ASL and closed captioning will be available.
“Being able to share Rick Guidotti’s portraits really helps one to see how our perceptions can be colored by societal values,” said Steven Walkley, D.V.M., Ph.D., co-director of Einstein’s Intellectual and Developmental Disabilities Research Center. “His images help us to see that these individuals are vibrant and eager to connect with others in the same way we all are.”
Registration is free and easy, and can be done using the link provided or by scanning the QR code on event posters and flyers found around campus.
In addition, a photo exhibit featuring more than 35 images of Rick’s “Positive Exposure” portraits is on display along Main Street, in Forchheimer, and will remain up through March 25. Be sure to stroll the hallway and take in this rare treat!
Posted on: Monday, February 28, 2022